Six days

since I posted..why so long..?
Well, last week sucked..I mentioned in my last post about not feeling so well so I spent alot of time sleeping and resting.. I didn't even go to any of my physical therapy sessions. By Friday I felt better but there really wasn't anything new to post about..so I figured I'd wait until today since I had physical therapy today. It went well..Did the same exercises but also spent some time on the treadmill..managed 3 and a half minutes before I was wiped out..

I was supposed to start Water Therapy last Wednesday but as I said..I didn't go to any of my therapies so this coming Wednesday will be my first time..I'm pretty anxious to get started with it.

I have been having some trouble with my left calf..the muscle is real tight..it is all knotted up..so water therapy should help me get that worked out..I do have some stretches that I've been doing but it isn't helping yet..

Not much else this time around...
Till next time..

Tuesday Evening

and it has been a tough last couple of days.. I know in my last post I was so thoroughly upset and disgusted with things. Well, the last couple of days have been "problematic" also and I'm still not sure if I am just recovering from Saturdays excursion to the parade or if I have a bug because my stomach has not been quite right at all since Sunday.

I have had to relegate myself back to wearing diapers which has proved a good decision twice today. This morning I felt a bit better but still had a very small headache. I woke up last night at 2:30am to go pee and then I also had to get up again at 6:00 this morning to go pee again. That was unusual but it could be the fact that I have been trying to drink more liquid so I don't dehydrate.

Since I have this blog set up to automatically post to the Yahoo TM group I have had alot of responses to my posts and alot of encouragement which I appreciate. Thanks all you folks..!!
It is nice to have others out there that are understanding of the "evils" of having TM although it is a shame that we have to be brought together under the circumstances that we have.

I feel that even though my wife is very supportive and understanding of my "situation" (and I truly appreciate her for everything) if I had not found the good folks on the message board of the Transverse Myelitis Association and the folks on the Yahoo group this could have been much more unbearable than it is.

I'm sure I'll have more rants in the future because everyday is a different roller coaster ride. I typically like roller coasters but this ride sucks..
Till next time...

It's Official

I am so friggen disgusted of this thing called TM... I'll explain in a minute..
I'll revert back to Friday...Friday I didn't feel well..had a headache and just felt overall rundown..I didn't even shower...We had been making plans to go to the NFL Hall of Fame parade Saturday morning and my wife asked me if I was still going to go..I told her I wanted to..

So..Saturday morning.. I felt..okay..not great but I wanted to go to the parade.. We woke up early Saturday morning and I felt fair.. We left the house just after 7:00am and got to the parade area about 7:30..I had my wheelchair so I was comfortable and we found a nice spot to watch the parade..the parade started and it was nice..people got so excited to see some of the inductees and there was a nice showing of Army there and the Marines had their Drum and Bugle Corp there so I enjoyed that..It was very patriotic..

The parade finished about 11:00 and we got back home about 11:30 or so and I was exhausted and so hot.. As soon as we got home I came upstairs to bed and laid down, my wife brought me a sandwich to eat and I watched TV for a short while and soon was asleep..I woke up at 5:30pm..and felt terrible. I figured I had just overdone my day by going to the parade and being in the sun..but my wife felt my head and I was burning up.. Took my temp and it was just over 100.. I figured then that I might be coming down with a flu or something..I wasn't sure..

Last night was a terrible night..I slept awful.. I had the most bizarre dreams and I was sweating all night..if you remember, I had gotten the blow up mattress for the bed for when I had the bed sore..and I've been sleeping on it because it is comfortable..but it is vinyl..and it is under the bottom sheet..and when I woke up I was drenched...

So, now to today..feeling pretty crappy today..no fever though..headache all day..and so tired..
All this is bad enough with having TM..it is so frustrating and just pisses me off...but to top it off..
I had another friggen bowel accident today... that is so goddamn degrading and embarrassing that I can't even explain..
I don't even know where this came from..I had a bowel movement earlier today and everything was fine..and I'm laying here on the bed watching a movie with my wife and the next thing I know..I have the "feeling" and it was too late..
I am so disgusted...and frustrated and I don't know what...
Till next time..